Melissa Ann Lively – the blog » Blog

what greets me at 3:00…

I still can’t believe I am letting him go to school all day, but thankful that he is well enough too for the first time in his life!   The feeding tube and PICC line are finally gone and we haven’t had a “failure to thrive” incident in almost two years.  We still fight the seizures, but his medication keeps them somewhat under control…  The Celiac is a “piece of cake,” and we have been so fortunate when it comes to his health!   What’s a mitochondrial disease anyway?!   But what I really can’t believe is …..  I am letting him ride the bus home with all of his friends!  We call it the “little bus” and he is the second stop from our neighborhood school, which is less than a mile away…  He gets home on the bus quicker than if I pick him up, even if I was first in the car pool line, which by the way you have to get there and hour before school even lets out to do that.  So finally one day, I asked myself, why am I not letting him ride that bus!  I am somewhat of a “slow learner” at times…

Pretty much the greeting I get everyday, just like this, not even a “hello,” just a stare.  Each day I “physically” turn him around and make him tell the bus driver goodbye and up the driveway he goes without a word, but I am sooooo glad to see him!